Today was a big day in the world of Angelman Syndrome families and a big day for science! Today, it was announced that the clinical trial of the common antibiotic, Minocycline, as a therapeutic treatment for Angelman Syndrome will soon begin! You can read all about it here.
Dr. Edwin Weeber, has been working with the Foundation for Angelman Syndrome Therapeutics to cure Angelman Syndrome. And he has in mice!!!! Now the clinical trials for HUMANS is about to start.
Most of you probably cannot imagine the joy, excitement, nervousness, happiness, and just gratefulness that the parents of AS individuals are feeling tonight. Many of us have cried together over long facebook conversations about the possibilities of what this could mean. I remain cautious. Guarded. But still overwhelmingly filled with hope.
So I ask two things of you....
First, please, please PRAY!!!!! Pray that this works. Pray for Dr. Weeber and his team. Pray for FAST and ASF. Pray for the Angels that are in the first round of the trial, for their safety. Pray for those parents like me that want so badly for this to work and to be a part of the next trial. And most of all, pray for all of our Angels that NEED this to happen.
And secondly, please go watch the Hope for a Cure video about it on the FAST Website. It is on the home page, first video. Watch Finn and Sophie's stories. Hear what Dr. Weeber has to say. Educate yourself. This would be a HUGE breakthrough for medical science!!!! A CURE for a GENETIC DISORDER! If this works, the possibility to cure everything genetic is that much closer! History is being made, and it is being made with Angels and Dr. Weeber leading the way.
Oh I could just kiss that man!!!! (Shhhh, don't tell Cole I said that! HAHA!)